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Interesting! I've always preferred to sit cross legged even though it makes my legs go numb so this could be perfect for me😊😊

Add back support and tilt to reduced coat hanger pain and we will have a winner.

I don’t think the chair would work for me BUT I can totally see how it would work for lots of people! Cool find 😊

I have a 6 and a 4 year old. I am a preschool teacher and I was diagnosed with myasthenia gravis and lupus this year. I knew I was sick for a while but I had to keep pushing my health to the side because of lack of support and life kept happening. Because of my conditions I'm learning to function again. My life has been turned upside down this year. I feel so bad for my kids and my heart hurts for myself. It's one thing after another and it's so hard when I'm trying to get my health under control.

I just explain it like it's a case by case thing. That's the easiest relevant example I could think of. Each situation is different, which requires different capabilities and a different degree of energy. Depending on where you are in yourself at the time (and the backlog of things you've already done that day before the event) that could be ok, be really difficult, or be too much. Maybe having a backup person for you could be a really good idea, the lessons don't get disrupted, and you don't have the pressure and can see to your needs better if and when you need to. I have had this pause when someone has asked me too 🤗🤗🤗💙💙💙. Sometimes it's a lot to explain, especially depending on how many times you've already explained. I hope you are feeling a bit better though 🤗

Are you on HRT right now ,I am going to have hysterectomy may be this month .i m young too 30 years ,extreme pain

Not being able to speak after time of seizures..losing an entire week and not listening to music or being able to go to gigs or preform music as I'm light sensitive . Ringing neuro first thing today and gp . As I'm behond stuttering and slurring my words:/ . Really really scary ... seizures are down right terrifying.. 😢

Felt this! Its hard not being able to finish tasks.

And it's hard to talk to other people about how we really feel.

Hi! I, too, have fibro/Cfs, and have had for many years. I believe trauma played a big part in my problem with this. My X husband died very suddenly in 1992. It really hit me hard. Then 4 yrs later, my oldest daughter was killed in a car accident. She was 22. I spent the next 5 yrs trying to fight to keep her little boy from being taken away from me by his drug addicted dad. When he was 8 the courts gave him to his dad. It really messed him up! He's now 30 and has struggled with drugs and prison, ever since. I was diagnosed right after my X died. After my grandson was taken away, it wasn't long before my Dr told me I couldn't work as a nurse anymore. As if the rest of it hadn't almost killed me, this surely did. I have just found your videos today and find your energy incredible! Of course, you're young! I'm not. I wanted to tell you, that I've found a great deal of relief for my pain, from a cream called "Just Cbd soothing Cream" 500mg. I get it from a place online called "Just Cbd" I do take a narcotic pain med, but I've been on the same dose for 8 yrs!! So it's barely helping. Pain specialists refuse to increase the dose, they spend their time trying to get me to take other rxs that have black box warnings. And are also addictive. So I am refusing to switch. Anyway, I just wanted you to know about a good topical cream that has no thc, but it is helpful to me! I hope it will help you too! For those times when you just want to go to sleep, but you can't lie on either side becuz both shoulders hurt, or both hips, or whatever. May God bless you!

Being in constant pain is depressing. You can't sleep restfully because you go to bed in pain. You go to bed in pain it's well painful. Your brain says hey you are in pain along with your body. Doing all those things feels impossible.

Heres the link to the chair: amzn.to/3RL3d7j

Facts! And it sucks!

Mine would definitely be getting more debilitated from fatigue and crashing from the smallest things. It would mean bedridden, unable to tolerate any light, touch, or sound, unable to talk or eat. Severe ME/CFS is called living death for a reason. If I’m being honest though I’m also scared of getting better because I feel like my personality is rooted in my illness, I’ve already lost myself and my life once, I don’t want to do it again.

Another clot, another tumor, or hurting my back again are my three major relapse/symptom fears, and many of my behaviors are centered around making sure that doesn't happen! But in the short term, I'm definitely stuck in a push/crash cycle with my Post-Hodgkin's chronic fatigue, so I'm starting an ME/CFS Self help course on July 1st to learn how to be better about pacing, so wish me luck!! (I'll post the link to the program if you tell me it's alright to!)

What is pots

This is how I feel daily and it makes me think of what I could do and who I was before getting so ill. It really sucks having a healthy brain and a broken body.

magnesium and vit. C supposedly aid digestion (vit. C in big doses also clears some histamine from the blood). back when I had an awful reflux flare, I went on a low FODMAP, no wheat, no dairy and anti-reflux diet at once and I had never felt worse. my body was deprived of nutrients. oftentimes, the best thing we chronically ill folx can do is to choose the least damage. the reflux turned into an EoE scare, but in the end it turned out to be my biggest MCAS flareup yet. a temporary low-histamine diet stopped it within an hour. I do still eat foods high in histamine. I love eating too much to just give up the pleasure of it. what I do is try not to combine the foods that get a 3 out of 3 in histamine content in the Mast Zell Aktivierung list.

Ulcerative Colitis person, getting my gallbladder removed july 2nd 2024

Thanks for sharing this and being vulnerable 🤍 I have some unknown chronic illness. All I know is that I struggle with reactive hypoglycemia, chronic pain in my joints and muscles and neuropathy… it’s exhausting. I cry often because I’m so frustrated. I have high hopes as to what I want to do, my yeah, my body says no too. Sometimes I force my body anyways then I’m worse off 😓

Does your hands and legs are in pain as mine? Even take something from shelf makes my hands strengless(( my legs start to feel weak

I just try and remind myself I have been here before and I survived it so i can do it again! Any my faith in the Lord definitely helps me!

I have POTS and this is very true! Thank you for taking about it! You’re channel has really helped me through my illness!

I do get resentful of people when they complain about (to me) minor and temporary health issues. But only when they make a really big deal out if it. I have some friends like this that makes huge drama and cancel on plans etc when I have popped extra pills and made a huge effort to show up despite all my struggles and just want to spend a nice time and forget my issues. And then to either be cancelled on last minute (sometimes when I’ve already taken the effort to show up at the place) or to show up but get to listen to complaints about their percived hardship.. and no questions asked about how I feel because ”well, your always ill right, whats the point in asking”… I have some clearing out of friends to do… 😞😓

I've been feeling so much frustration and anger with this lately, in my 20s with so much ambition and a body that doesn’t cooperate. Having to give up all the hobbies I loved and reprogramme myself to like doable things. I hope I get to a stage where the frustration fades❤ As much as I try and be postive I think it's helpful to say sometimes, that it fucking sucks😆

Same here but I have back pain that’s spreading up my neck and ribs slowly and it’s apparently because of my scoliosis so I’m in constant pain and my parents think I’m lazy but I just don’t want to move too much or it’ll be even worse tomorrow

Jesus is all you need.

I can't tolerate steak w/out getting sick, yet... have been doing BBBE for over 9 months now. First 3 months, strict beef (in any form other than steak) butter, bacon, eggs. Super crispy bacon on hand at ALL times, sitting in a bag on the counter was a life-saver imho. (still is, tho now I don't eat as much of it) I ate a LOT of it & didn't care. I mean.. a LOT. lol Next 3 months, one at a time, introduced other meats.. chicken, pork, turkey & once in a while tuna or fish. Last 3 months, allowed for tiny amts of cheese (I break 0 carb slices of cheddar or cheddar jack into 4 pcs & put on parchment paper in 350 degree pre-heated oven for 10-12 min until 'lacey' looking throughout. Let cool & again... counter surfing bag full.. it's like cheese cracker crisps. Deeeelish) If I get tired of just ground beef, ground turkey... I'll add ONE teeny tsp of chunk-less salsa, sugar free bbq sauce or chive cream cheese. Changes the entire taste with (for me) no adverse effects. My chronic fatigue, constant lethargy, headaches, inflammation & back pain has improved significantly. I have a diagnosed sleep disorder for over 2 decades now where I wake up nearly every hour. While I can go back to sleep fairly quickly, it interrupts my sleep whenever my brain tries to go into REM sleep. I've had many sleep studies, medications etc. & guess what........... 6 months ago, I started sleeping through the night for the first time since I can remember. It's nuts... & no meds. I make chicken nuggets from well drained canned chicken + egg + tiny amt of cheese & roll em in crushed pork rinds. Baked or air-fried, yum! (things I'm sure the kids would eat too) Along w/ a chicken + homemade alfredo 'lasagna' using italian style egg-wraps in place of noodles. Can't even tell.. Again, something the kids might eat. All in all, it has actually saved me lots of $ in groceries, since I'm no longer eating or buying all the crap I used to. Best, my blood sugars were out.. of.. control... checking it is what got me started on this. I took it 4x to make sure I was reading the number right, it was scary tbh. It took about 3 months to start to normalize, but now... best part = fasting blood sugar between 71-84. Numbers I never thought I'd see & I feel better than I have in over 2 decades. It's not for everyone, but... if it helped so much, there are definitely cheaper ways to do it, get same results with BBBE imho & there are things you can make that the family can also eat. :) Do whatever makes YOU feel best.

This is me 100%, but I’m told to “just power through”, “tell my mind to not think about the pain and fatigue”, & that I’m fine…

I appreciate the thought behind sharing this message (I really do.) Unfortunately, some of us with chronic illnesses are only going to and continue to get worse. I can’t tell myself “I’ve been able to get better before, I’ve gotten out of this place before.” Because I haven’t and the reality is, I know it won’t. It’s a hard pill to swallow. For those of you where I am, only getting worse and likely will not get better…I see you. I’m there. I want to remind you to please don’t give up on this life. I know how hard this is emotionally on top of the physical day in and day out. Just do the best you can. Because that’s all we can do. I find it’s important to appreciate what we still do have. And to always remember, everyday we have still here is a blessing. 🤗 hugs

Ulcerative colitis, Ideopathic intracranial hypertension, and accompanying joint/bone problems. I have so many days like this. ❤️ Ty for sharing.

I’m so frustrated. I’ve been trying to get in to a therapist for almost 2 months and I’ve been going back and forth with the therapist over email for weeks, they answer but sometimes it takes a week because they are on vacation, three times…. They are the best therapist and the only one that deals with chronic illness in my area. I’ve said I need an afternoon appointment but the new therapist I’m going to go to temporarily texts and asked if I want two appointments in the early morning in the same week. I don’t understand why they don’t just call me, which I’ve continually suggested. I understand they are overwhelmed with patients and need a break too but how do they expect clients who are struggling to hang on mentally and who also have physical struggles, deal with this frustrating scheduling nightmare?! On top of a single session costing over a $100. I’m about at the end of my rope with them, but I need help before I become suicidal.😡😩😵‍💫🫥

ALL THE TIME but I'm doing better lately ❤

Thank you for this msg. It was much needed today🙏🫶

What do you do when you feel burnout?

Today's heat level was OK. But having the windows open when it's a high pollen count, ain't good for my Asthma, Long Covid, Costochondritis chest. I've got more sensitive the last 4 years. Told my partner today I was feeling cold. Temperature was 24 degrees. I was indoors. But my chest was feeling cold and I felt like I was breathing in cold air. Chest was aching. Shut windows. Several hot drinks later and a nap on sofa. Recovered a bit. Going to have to take noticed of high pollen count more. Or I'll be having an asthma attack. I took antihistamine tablet but Costochondritis was ruling today. Can't even enjoy the summer. And running into headaches more often at the moment too. Do what we can, when we can. That's all we can do. Look after ourselves. ❤

Hey Aimee, I found you few months ago. Thanksalot for sharing your journey.I've IC for the last 5 years, and I can understand how hard our lives are yet we don't stop striving for a better tomorrow

I hope your pain will ease with time

Yass girl❤ Thank you! Chronic illness sucks.

You got this girl keep going

I say this all the time, my brain wants to do so much but my body won't cooperate.

I have been trying to go to church activities to socialize

The heat is making my upper back get irritated .

Love your positive and wise but also very real outlook on living with chronic illness. I have ME/CFS,hEDS,POTS, and MCAS. Praying for you and everyone living with health struggles, God has a plan, even if we can’t see it clearly.❤

What chronic illness(es) do you have?

Hello

The hospitals that I contacted, don't do any Anesthesia, not even local; which is no prob for me. But they said that pre-operation it's mandatoy to do a blood withdrawal and coagulation test. I don't understand why that is, since the procedure doesn't require cutting, nor anesthesia. Is the blood test really mandatory?